After sharing my health sorry so far and while I am awaiting diagnosis I am very honoured to be hosting blog posts from other bloggers about heath conditions they or their loved ones face everyday
Today on my Health Story Series is the lovely Lorraine who writes about family life with a teen on her lovely site The UnCheshire Wife.
Lorraine’s post today resonates massively with me as part of my testing for my own ill-health next week is being done with a Rheumatology Consultant at my hospital appointment so I found this post especially interesting to read as this details her life and living with Rheumatoid Arthritis.
You can also find Lorraine here:
Living With Rheumatoid Arthritis
New study part funded by Arthritis Research UK has revealed that around 28m people in the UK are living in chronic pain from conditions such as arthritis – almost triple the number experts had presumed.
So i’m not alone then, just another 1 in 28million.
I have had rheumatoid arthritis since I was 23.
It started with a swollen ankle and a telling off from the doctor about my shoes, and finished 18 months later at my final diagnosis with a calf muscle wasted away.
Over the 30 years my health has fluctuated, there are so many combinations of drugs for arthritis and I discovered what works for you might not work for me. After an initial stay in hospital the first medication I was given had me collapsing at the bus stop, that wasn’t for me!
And here we are 30 years on, I have a 15-year-old son, I work very part-time in a museum and I feel well, the difference now is the way Arthritis is managed.
NRAS the Rheumatoid Arthritis Society have a self management programme, this is the way forward and it is how I’ve managed over the years.
I still wanted to go to work, out with friends and most importantly wear the same clothes & shoes that I love.
The RASMP can help you to
- Get the best from your medication
- Communicate more effectively with your healthcare team
- Learn how to better manage flares, pain and fatigue
- Understand the benefits of pacing, avoiding ‘boom and bust’ syndrome
- Meet others with RA and share experiences
- Set meaningful, achievable goals and action plans
- Learn how to problem solve
- Manage anxiety and depression
I have found over the years of meeting people with an Arthritis diagnosis they are worrying about their future health, wondering what will happen to their mobility, I was given advice from a doctor at Wrightington Hospital many years ago ‘ Don’t look at anyone else, everyone is affected differently and what happens to one may never happen to another” and I’ve found this to be true over the 30 years.
So at this moment in time I am well, I do have severe damage to some of my joints, I can’t walk in bare feet, my hands look a mess but I still try to do the things I want.
And I still can’t believe as I look at my 6ft tall teenager that we managed to get through the baby years despite me not being able to carry him up and down stairs.
Thank you so much Lorraine for sharing your story and for being so supportive while I am awaiting diagnosis of my ill-health.
Why not pop over and see what else Lorraine is writing about over on her blog The UnCheshire Wife.